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Rare Disease Day
Results: 254

#	Item
11	European Strategy on Rare Diseases is Adopted by Health Ministers of the EU A European strategy that calls upon Member States to implement national plans for rare diseases, before the end of 2013, was adopted by the Coun Add to Reading List Source URL: www.grdo.ie Language: English - Date: 2009-07-19 14:42:12 Rare disease European Organization for Rare Diseases Orphan drug Cystinosis Disease Genetic Alliance UK Rare Disease Day Health Epidemiology Medicine
12	Rare Disease Day – February 27, 2012 Presentation to the Oireachtas Committee on Health Opening Statement – Anne Lawlor – Information Officer GRDO On behalf of the Genetic & Rare Disorders Organisation, the Nationa Add to Reading List Source URL: www.oireachtas.ie Language: English - Date: 2014-07-30 06:43:08 Epidemiology Rare diseases Health economics Clinical research Rare Disease Day Orphan drug Medical diagnosis Health care Disease Medicine Health Medical terms
13	Presentation to the Joint Oireachtas Committee on Health & Children Rare Disease Day 28th February 2014 Opening Statement Lorraine Dempsey-Chairperson Representing Special Needs Parents Association (SNPA) SNPA is a paren Add to Reading List Source URL: www.oireachtas.ie Language: English - Date: 2014-07-30 06:28:44 Medical genetics Education Medical ethics Epidemiology Rare disease Special needs Genetic counseling Developmental disability Genetic testing Health Medicine Disability
14	GG_toolkit_three_20130808.indd Add to Reading List Source URL: globalgenes.org Language: English - Date: 2015-02-05 16:41:58 United States Congress Global Genes Project Rare Disease Day United States House of Representatives United States Capitol Health Government Medicine Epidemiology Rare disease Patient advocacy
15	13 February 2012 \| Launch of Rare Disease Day 2012 Promotional Video Featuring Six People from Ireland with Rare Conditions Six people from Ireland, each with a different rare condition, feature in a fantastic new promot Add to Reading List Source URL: www.grdo.ie Language: English - Date: 2012-02-12 18:56:35 Blindness Epidemiology Rare disease Ataxia Genetic disorder Retinitis pigmentosa Ehlers–Danlos syndrome Spinocerebellar ataxia Post viral cerebellar ataxia Health Anatomy Medicine
16	Genetic and Rare Disorders Organisation NEWSLETTERGENETIC AND RARE Add to Reading List Source URL: www.grdo.ie Language: English - Date: 2012-06-12 12:05:44 Rare diseases European Organization for Rare Diseases Rare Disease Day Clinical research Orphan drug Medical genetics Disease Genetic counseling Genetic Alliance UK Health Medicine Epidemiology
17	The Road to Diagnosis: Stories from Patients with Rare Diseases Personal stories from members of Inspire’s online support communities A Special Report from Inspire in recognition of Rare Disease Day 2011 Add to Reading List Source URL: www.inspire.com Language: English - Date: 2015-05-19 12:25:16 Von Hippel–Lindau disease Von Hippel–Lindau tumor suppressor Genetics Next Magazine Medicine Health Genodermatoses
18	Rare Disease DayJoin MassBio, VHL Alliance, member companies, patient groups, patients and legislators to recognize Rare Disease Day. Friday, February 28th 11 a.m. Add to Reading List Source URL: www.massbio.org Language: English - Date: 2014-03-12 17:41:27 Hermansky–Pudlak syndrome Adrenoleukodystrophy National Organization for Rare Disorders Patient advocacy Patient Health Rare diseases Rare Disease Day
19	世界希少・難治性疾患の日 Rare Disease Day 患者の声テーマ「発信」 Patients Association for Distal Myopathies Add to Reading List Source URL: rarediseaseday.jp Language: Japanese - Date: 2015-01-17 20:56:21
20	Berlin, denBlack Pearl Gala in Brüssel: ACHSE wird mit dem „EURORDIS Patient Award“ ausgezeichnet Brüssel, 25. Februar 2014: Anlässlich des Rare Disease Day, des Tag der Seltenen Erkrankungen, wurde d Add to Reading List Source URL: www.achse-online.de Language: German - Date: 2014-03-21 12:22:23